The Good, the bad and the ugly – part 3

The Ugly.

Crohn’s disease is an evil bitch.

I stopped getting my infusion therapy back in April and started Humira about six weeks ago. It hasn’t given me any relief yet, but I am hopeful that it will … I have two friends who have experienced tremendous improvement with their Rheumatoid Arthritis.

But that being said, the last two months have been hell. Not even the steroids seem to be helping me anymore, and I had a few weeks where I only left my house to go to work. I felt like I was developing a mild case of social anxiety disorder, so I’ve been doing my best to combat the desire to stay home all the time. (Don’t want to wind up a recluse with 50 cats and a home shopping channel addiction. Next thing you know I’d turn up on some crazy reality show, and it’s all downhill from there.) It’s so hard to stay hopeful and positive, so thank God that I have children. Sometimes they are the only reason I can get myself going.

One interesting part of this new drug is that it is self-injection. I am getting four hours a month back now that I don’t have to get my meds via infusion, but I had to mentally prepare to administer the shots to myself. The first dose was just too much to handle (four shots in the belly at one time), so my doctor’s nurse graciously offered to help. I nearly passed out, so thank goodness I didn’t do it myself at home. But now I am a pro … it’s amazing what you can do when you have to.

So help cheer me up … tell me about something that you now do that you never thought you could or would.

4 thoughts on “The Good, the bad and the ugly – part 3

  1. If I really told you my answer to your question, it would depress you, so we won’t go there.

    I’m truly sorry about the health problems. There really is nothing worse. Hope you are feeling better with this new med.

  2. Wait a minute. I have the mild social anxiety, stay home complete weekends, have the first of 50 cats, and shop online like crazy and I thought that was all OK! I have no chance of showing up on a reality show, tho. Sounds like you’re on a mission to beat that bitch!

  3. On the positive side, I never thought I’d take a contract job and it ended up working pretty well.

    As for being a recluse, even if you decide to restrict yourself to your house, you’d never get away with being a solitary recluse. We’d stage an invasion.

  4. I never thought I’d hire a personal trainer!! He hasn’t killed me yet… although last night he was laughing at me! WTF???

    And what Kristy said… we’ll come to you if need be!

    On a postive note… at least you didn’t say you’d become a hoarder too!!

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